Imagine this: You have two babies under 2 years old and the doctors tell you they have a rare fatal neuromuscular disorder that has no known cure, no known treatment and no organized research. The prognosis is they cannot live past 5 years old. … That’s that, right? Not if you’re John Crowley.
You might just quit your lucrative job, round up the researchers involved in the field you need, raise millions, form a company, do the research, and miraculously find a promising medicine. Good news, right?
Not if you’re then told by the power brokers, medical research orgs and hospitals that your children can’t participate in clinical trials because that would be a conflict of interest! … Give up yet?
Not if you’re John Crowley.
John Crowley On The Today Show 2001
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"The John Crowley Story"